This is his story....

This is his story...

On August 6, 2010, at 18 weeks gestation, our baby boy was diagnosed with anencephaly. The doctors told us that our sweet baby did not have much of his brain or skull, and that there was no way he would survive. They say that 95% of pregnancies diagnosed with anencephaly are terminated. We knew that we must give our baby boy life.

After 42 weeks, Baby Timothy Frank was born on January 25, 2011 at 5:40 pm, truly "Tiny Tim" at 4lb 15 oz. He was a fighter - he needed to be born alive to share his liver cells to save other babies, and he did just that. He took one breath and left us only seconds later to be with the Lord. We miss him so much but are so proud of what his little life is accomplishing.

This website is to keep Timothy's memory alive and share bits of our journey with our precious little boy. Every life is precious and has purpose - Timothy was able to accomplish so much in his short little life and we are so honored to have been chosen to be his mommy and daddy. Our hope is that Timothy's story will encourage others to give their children a chance to live, to tell their own story, and fulfill their purpose.

To God be the Glory.


Friday, March 4, 2011

The Miracles Continue...

Today I spoke with the Organ Donation Organization and received some very encouraging news!  Timothy's liver cells were successfully cryogenically frozen and are awaiting donation to babies diagnosed with Urea Cycle Disorder.  This disorder can be fatal or lead to significant brain damage for babies.  Unfortunately it's a long process so we may not know who or when this will happen for another six months or so - but it is still very exciting!!  One of the coolest things is that this is a completely new process in the US - they had been doing this in Germany and just gained approval to perform this procedure over the last few months here in the states.  Timothy is one of the first ones to donate in this way!!  This is the first time the donation organization and the hospital have done this type of donation, which is helping to pave the way for other parents to do the same, especially parents of anencephalic babies...there he goes again, changing everyone's lives!  Good work Baby Timothy :)
More to come...

'I tell you the truth, whatever you did for one of the least of these brothers of mine, you did for me.' Matthew 25:40
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5 comments:

  1. HollyMarch 5, 2011 at 8:29 AM

    How amazing that Timothy could help in this way!

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  2. Jen BujnoMarch 8, 2011 at 9:42 PM

    WooHoo!! You Go, Timothy!!!

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  3. AnonymousMarch 14, 2011 at 3:24 PM

    What a reminder to us that we are capable of so much more than we could ever even imagine; we ask for rubies when God is waiting to give us diamonds. Timothy is in heaven already grasping that concept. He's a diamond! Missing you today Tiny Tim :( Love, Aunt Toey

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  4. AnonymousMarch 29, 2011 at 9:55 PM

    That is amazing but I shouldn't be surprised at what Timothy's precious life continues to accomplish. Love you all!
    Michelle

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  5. AnonymousMarch 30, 2011 at 10:36 AM

    How awesome is our Father in Heaven! He has allowed you to see what an amazing blessing one little baby boy can be in such short amount of time! He has used Timothy in ways that science and the medical field could never comprehend. Our God had it all planned out before time began! What a blessing this boy is to his family, to friends, to people not even known and it has all been to God's glory!! We are blessed to have been a part of this journey and we have been blessed to see how the Lord has molded so many thru Timothy's life!! Praise God and all Glory to Him! Love to you all!
    Dawn

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