This is his story....

This is his story...

On August 6, 2010, at 18 weeks gestation, our baby boy was diagnosed with anencephaly. The doctors told us that our sweet baby did not have much of his brain or skull, and that there was no way he would survive. They say that 95% of pregnancies diagnosed with anencephaly are terminated. We knew that we must give our baby boy life.

After 42 weeks, Baby Timothy Frank was born on January 25, 2011 at 5:40 pm, truly "Tiny Tim" at 4lb 15 oz. He was a fighter - he needed to be born alive to share his liver cells to save other babies, and he did just that. He took one breath and left us only seconds later to be with the Lord. We miss him so much but are so proud of what his little life is accomplishing.

This website is to keep Timothy's memory alive and share bits of our journey with our precious little boy. Every life is precious and has purpose - Timothy was able to accomplish so much in his short little life and we are so honored to have been chosen to be his mommy and daddy. Our hope is that Timothy's story will encourage others to give their children a chance to live, to tell their own story, and fulfill their purpose.

To God be the Glory.

Tuesday, January 22, 2013

The Veggie Wrap

Veggie wraps make me cry.  Okay, not just any veggie wrap, specifically Au Bon Pain's Mediterranean wrap.  My work travels often bring me to the train station in Washington D.C..  On my way home I always look for something quick to grab for dinner for the ride home.  Invariably, I find myself circling the refrigerator section, telling myself, this time, I will grab my one-time favorite Mediterranean wrap...and invariably...I find myself tearing up even looking at the sandwich.  I'm pretty sure on more than one occasion, other passengers bustling through the station have noticed.  You see some pretty crazy things at the train I suppose they chalk it up to just another crazy crying over sandwiches. 

It's amazing how the tiniest thing can you take you back so quickly, to an exact feeling, an exact moment in time.  The night we had Timothy, I found myself at midnight, with my husband quietly asleep in the hospital bed next to me, trying over tears to eat my Mediterranean veggie wrap.  It's the Italian in me I suppose, running to food for comfort. I don't think I made it much beyond two bites.

So...two years later...I am still not able to eat my favorite sandwich.  It's just a reminder, that at any moment, you may never know what will set you off.  It's the "new normal" that I knew one day would become my life when we first heard Timothy's diagnosis.

Timothy's life changed so many things in my new normal has a new perspective.  It's knowing not to sweat the small's appreciating the beauty of life, the miracle of a healthy baby, the blessing of's being not afraid to share your story, and not afraid to stand up for what you believe in.  It's feeling 100% confident that God works all things for the good of those who love Him.

And with that new perspective...I guess it's time that I should start looking for a new favorite sandwich...



  1. :) I love you Holly!

  2. Oh Holly...God is preparing the biggest veggie wrap ever for you in heaven!
    Love you Lids!

  3. I don't know u at all but ur story is so amazing.ur a very strong woman.& even though I've never met u these stories bring tears to my eyes but so muchjoy to my heart!Bc i can truely feel ur love & also ur pain.I am truely sorry for ur loss but even though I resize its been a very hard road to recover from a loss of such as ur own child. U hv certainly. Put how very precious life is & to b thankful every single day that u hv on this earth.That one day a home a home a forever home awaites us if we love & trust in our heavenly father of all father's.I am so happy that God has truely helped u deal with all of this to the very best that possibly can & even though still as u & ur family move forward u hv been able to keep his love so alive in each of u.& hv found peace to b able to live happy with him still in y'alls prayers will b with u & ur family.& with each passing day r min r yrs yrs.just remember that y'all will sum day meet again.& that they r ppl out here that has read ur story. That may choose not to comment but that r praying for u & ur family every day! U I can tell r a very devoted mother& my dad always says to me... when I ask him why??? Did God hv to take a child home so early in it's life? He says that only God knows wats around the corners for each & every one of us... & that mayb babies r called home early bc of certain things they may hv to go through & he don't want the baby having to go through the pain r the family to either.r mayb he need him as u mentioned to help him prepare heavens for all the ppl to come home. But even thoughwe don't understand the reasons for stuff like this God knows.&he most certainly didn't do it bc he knew u wasn't going to take care r love him bc I can tell ur a wonderful mom.but for watever the reasons r we r not at liberty to question r even really know God's reasons we just hv to belive that for WAT ever reasons ur son is in God's hands & he's happy bc he really didn't hv the time to know really who r even way family meant r a mom & a dad was. But u r truely a very blessed woman u got a loving family still & they all can't ever replace way u hv lost.but they can fill the emptiness. They love that ur family has for all this will always live on thro7gh u & them & until all of Y'ALL meet again. I am sure. U will b filled a with a abundance of love from the ones u love while here on earth. But I am truely so sorry.luv u through God we pray Amen!